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Online support

There are a number of fantastic web-based resources and support groups for patients and family members

Stanford University in the United States has a HD research centre with lots of great information online.

St Andrews Healthcare has a dedicated HD website with lots of resources based on over 13 years of clinical practice with Huntington's patients.

HDYO is the only youth organisation in the world totally focused on HD and children. They have tailored information, games, videos for all ages of children and young adults.

HDBuzz is the definitive science-made-easy source of all HD related research and news.

There are also a number of Facebook support groups which include patients, carers and family members from around the world. You have to be a member of facebook and request to join and you should be mindful of the privacy settings on groups as some are secret or closed which means that only the people in the group can see the posts but others may be accessible by your Facebook friends.

https://www.facebook.com/groups/260577501111155/ is a chat group specifically for patients, carers or family members in Northern Ireland 

https://www.facebook.com/groups/1483835428579671/ is a chat group for children and young adults affected by HD living in Northern Ireland

https://www.facebook.com/groups/1357710634338867/ is a chat group for people in Northern Ireland wanting to learn about family planning/PGD

https://www.facebook.com/groups/109970702370267/ Huntingtons Chorea

https://www.facebook.com/groups/247920126366/ Huntington's Disease Quest for a Cure

https://www.facebook.com/groups/huntingtonsdisease/ Huntington's Disease Support group

https://www.facebook.com/groups/406770452750893/ The Good, the Bad and the Ugly

https://www.facebook.com/groups/165902300238342/ Huntington's Disease Support group

Writing is a great form of release and many people affected by HD around the world have their own blog to share thoughts, feelings and educate others.

https://kyraashley.wordpress.com/ Ashley Clarke is a HDANI trustee, carer and at risk of HD who started the blog I'm not drunk

http://curehd.blogspot.ie/  Gene Veritas is based in the United States and is a very active HD advocate on social media

http://www.insidehd.com Steven Beatty is a 41-year-old married Canadian dad with HD who writes about his experiences