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Who we are

Thumbnail picture of Sorcha  McPhillips

Sorcha McPhillips

Chief Executive

Sorcha joined HDANI in September 2014 having come from a background in human rights law and charity work. Since joining she has worked on ensuring that HDANI has all of the policies and procedures needed to operate professionally. Sorcha is responsible for managing staff and volunteers,  raising funds, designing and running programmes of work, developing strategies, engaging with media, politicians and policy makers and generally looking after the day to day running of the Association.


Sorcha works from home fulltime.

Email: sorcha@hdani.org.uk
Phone: 079 8284 3907
Thumbnail picture of Jennifer  Warnock

Jennifer Warnock

Chairperson

Jennifer took on the voluntary role of Chair of the Board of Trustees in September 2014. She lives in West Belfast and cares for her husband Pip who has HD. She has three children and is an active memebr of our Belfast Support Group. As part of her role as Chair Jennifer runs our board meetings, attends and takes part in events and represents HDANI at cheque presentations. 

Thumbnail picture of Angie  Smyth

Angie Smyth

Part Time Support Worker

Angie has been working with HDANI since September 2016. Prior to this she has worked as an integrative therapist providing short and long term counselling to individuals.

She has volunteered with the NSPCC delivering educational assemblies and workshops in schools.

Angie has also volunteered for both NSPCC and MACS as a mentor to a number of vulnerable young people and their families.

Angie works from home in Lurgan Wednesday- Friday and also facilitates the monthly Omagh and Armagh Support Groups.

Her role includes providing information, emotional and practical support to those affected by HD as well as training to health and social care professionals.

Email: angie@hdani.org.uk
Mobile phone: 07921 513561
Thumbnail picture of Zelie Leech

Zelie Leech

PT support worker for Belfast, Northern & South Ea

Zelie joins us with a BA (Hons) degree in Health and Social Welfare from John Moore University Liverpool and over 10 years experience in social care and support work most recently with the Alzheimers Society NI. Her role with AS as a Dementia Support Worker / TrIC (Training for Informal Caregivers) Facilitator involved providing support to people living with dementia, their carers and family. She also delivered a 6 week programme designed to inform carers of their legal rights, benefit entitlement, help with day to day living such as managing behaviours and planning for the future.

How does Zelie describe herself?

"I am a caring person, I enjoy meeting new people and travelling to new places. In my spare time I love taking my dog for long walks, socialising and reading a good book. My family are very important to me and animal welfare."

Zelie will work Monday - Wednesday in addition to facilitating the Belfast and Limavady Support Groups.


Email: zelie@hdani.org.uk
Mobile phone: 077 33935863
Thumbnail picture of Brendan Major

Brendan Major

Treasurer

Brendan has no HD connection and instead joined the board of trustees to share some of his extensive experience of working in voluntary organisations including the NSPCC. As Treasurer Brendan is responsible for ensuring the financial security of HDANI and works closely with Sorcha and our accountant on setting and reviewing our budgets. 
Brendan enjoys hiking and took on a 900mile walk to raise funds for HDANI.

Thumbnail picture of Ashley Clarke

Ashley Clarke

Youth Committee Member

Ashley Clarke joined the board in 2014 having cared for her dad Des who has had HD for over 8 years.  In addition to helping her brother care, Ashley is now an events management student at University of Ulster and actively involved in HDANI as a trustee, volunteer in our youth programme and a committed fundraiser. She stepped down from the board in September 2017 to focus on her role on our youth committee.

Thumbnail picture of Paula  McElhinney

Paula McElhinney

Trustee

Paula has been involved in HDANI for a number of years. She has HD which she inherited from her mother who she helped care for until her death. Paula is married with five children and lives in Co Londonderry. She is an active member in the Limavady Support Group and a volunteer with our youth and befriending services.

Thumbnail picture of Martina Stephens

Martina Stephens

Trustee

Martina joined the board of HDANI in 2015 though she had been a member of the Limavady Support Group and a volunteer for a number of years assisting with youth and befriending and helping to raise funds. Martina is at risk of HD through her mum who has passed away and she has other siblings affected. Martina lives in Swatragh and is married with three children including a little boy who was born through PGD to ensure that even if she develops HD he will never inherit it.