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Who we are

Thumbnail picture of Sorcha  McGuinness

Sorcha McGuinness

Chief Executive

Sorcha joined HDANI in September 2014 having come from a background in human rights law and charity work. Since joining she has worked on ensuring that HDANI has all of the policies and procedures needed to operate professionally. Sorcha is responsible for managing staff and volunteers,  raising funds, designing and running programmes of work, developing strategies, engaging with media, politicians and policy makers and generally looking after the day to day running of the Association.

Sorcha works from home fulltime.

Email: sorcha@hdani.org.uk
Phone: 079 8284 3907
Thumbnail picture of Jennifer  Warnock

Jennifer Warnock


Jennifer took on the voluntary role of Chair of the Board of Trustees in September 2014. She lives in West Belfast and cares for her husband Pip who has HD. She has three children and is an active memebr of our Belfast Support Group. As part of her role as Chair Jennifer runs our board meetings, attends and takes part in events and represents HDANI at cheque presentations. 

Thumbnail picture of Errol  Walsh

Errol Walsh

Part Time Support Worker

Errol has been working for HDANI since 2008. He became involved initially as a member of the Belfast Support group with his wife Susan.

Errol works from home in Antrim Monday- Wednesday and also facilitates the monthly Limavady and Belfast support groups.

His role involves providing information, practical and emotional support to those affected by HD as well as training and resources to health and social care professionals.

Email: errol@hdani.org.uk
Mobile phone: 0795 409 8051
Thumbnail picture of Angie  Smyth

Angie Smyth

Part Time Support Worker

Angie has been working with HDANI since September 2016. Prior to this she has worked as an integrative therapist providing short and long term counselling to individuals.

She has volunteered with the NSPCC delivering educational assemblies and workshops in schools.

Angie has also volunteered for both NSPCC and MACS as a mentor to a number of vulnerable young people and their families.

Angie works from home in Lurgan Wednesday- Friday and also facilitates the monthly Omagh and Armagh Support Groups.

Her role includes providing information, emotional and practical support to those affected by HD as well as training to health and social care professionals.

Email: angie@hdani.org.uk
Mobile phone: 07921 513561
Thumbnail picture of Brendan Major

Brendan Major


Brendan has no HD connection and instead joined the board of trustees to share some of his extensive experience of working in voluntary organisations including the NSPCC. As Treasurer Brendan is responsible for ensuring the financial security of HDANI and works closely with Sorcha and our accountant on setting and reviewing our budgets. 
Brendan enjoys hiking and took on a 900mile walk to raise funds for HDANI.

Thumbnail picture of Ashley Clarke

Ashley Clarke


Ashley Clarke joined the board in 2014 having cared for her dad Des who has had HD for over 8 years.  In addition to helping her brother care, Ashley is now an events management student at University of Ulster and actively involved in HDANI as a trustee, volunteer in our youth programme and a committed fundraiser.

Thumbnail picture of Paula  McElhinney

Paula McElhinney


Paula has been involved in HDANI for a number of years. She has HD which she inherited from her mother who she helped care for until her death. Paula is married with five children and lives in Co Londonderry. She is an active member in the Limavady Support Group and a volunteer with our youth and befriending services.

Thumbnail picture of Anthony  McQuillan

Anthony McQuillan


Anthony joined HDANI in 2015 having no personal connection to HD. Initially he volunteered an extensive amount of time and resources in developing our custom database and has since joined our board as a Trustee. He brings with him thirty years of business and volunteering experience. In addition to running his own IT company Anthony is also a musician.

Thumbnail picture of Martina Stephens

Martina Stephens


Martina joined the board of HDANI in 2015 though she had been a member of the Limavady Support Group and a volunteer for a number of years assisting with youth and befriending and helping to raise funds. Martina is at risk of HD through her mum who has passed away and she has other siblings affected. Martina lives in Swatragh and is married with three children including a little boy who was born through PGD to ensure that even if she develops HD he will never inherit it.

Thumbnail picture of Bernie Kerlin

Bernie Kerlin

Sessional Counsellor

Bernie joined HDANI in 2016 as a sessional counsellor with the Omagh Support Group.

Thumbnail picture of Carol  Watkin

Carol Watkin

Sessional Counsellor

Carol joined HDANI in 2015 as a counsellor working with the Limavady Support Group. She also volunteers for HDANI providing one to one counselling for people in the Derry/Antrim areas.

Thumbnail picture of Sarah  Feeney

Sarah Feeney

Sessional Counsellor

Sarah started working with HDANI in June 2016 as a sessional counsellor with the Belfast and Armagh support groups.