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29 documents

Title
Summary
Updated
Bytes
Type
A standard of care for HD, A patient family perspective
Author Charles Sabine, a family advocate who has HD himself. keywords: Sabine, carer, patient
Mon 19 Sep 2016
1,279,282
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Caring for family members with chronic physical illness
Authors Lim and Zebrack provide a review of literature on family carers keywords: family, carers, pain, caring
Mon 19 Sep 2016
307,280
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Cognitive impairment and behavioural difficulties in patients with Huntington's disease
Author C. Bourne examines the impact of HD on thoughts and behaviours keywords: cognitive, behaviour, HD
Mon 19 Sep 2016
414,268
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Communicating inherited genetic risk between parent and child
Authors Emma Rowland and Alison Metcalfe examine the issues of explaining genetic risk to children keywords: genetic, risk, inherited
Mon 19 Sep 2016
732,917
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Denial and Unawareness in HD
HDSA 2015 keywords: symptom denial, apathy, lack of awareness
Wed 14 Sep 2016
2,214,138
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Family Planning & HD
keywords: PGD, IVF, babies, HD, family, genetic testing
Wed 21 Oct 2020
279,027
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Genetic Testing for Huntingtons
HDSA 2009 keywords: genetics, testing, predictive
Wed 14 Sep 2016
782,322
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Genetic Testing Guidelines
Published in 2003 in the United States keywords: genetics, testing, predictive
Wed 14 Sep 2016
104,220
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Guide for Occupational Therapists
Guide for Occupational Therapists keywords: occupational therapist, therapy
Wed 14 Sep 2016
1,391,168
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HD & Behaviour
keywords: mood, apathy, depression, anxiety, HD, behaviour
Wed 21 Oct 2020
267,899
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HD and Everyday Activity
keywords: occupational therapy, movement, exercise, HD
Wed 21 Oct 2020
352,621
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HD Speech and Language Difficulties
HDSA 2014 keywords: swallow, speech, communication, HD, dysphagia
Wed 14 Sep 2016
1,454,972
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HDANI Autumn/Winter Newsletter 2020
Read about the latest HD news, tips and advice and hear about local families. keywords: Huntington's disease, HD, HDANI, newsletter, carers, huntingtons
Tue 29 Sep 2020
1,993,844
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HDANI Strategic Plan 2018-2021
Our priorities for HDANI from 2018-2021 keywords:
Tue 11 Sep 2018
2,765,166
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Help for HD
keywords:
Fri 16 Oct 2020
93,090
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HSC staff quote
keywords:
Fri 16 Oct 2020
90,458
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Huntington's Disease
keywords: You have the power to change lives
Mon 07 Jun 2021
998,412
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Juvenile HD and the School Experience
HDSA 2006 keywords: education, school, JHD
Wed 14 Sep 2016
6,026,017
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Juvenile HD- A family Guide
HDSA 2009 keywords: JHD, children youth, HD
Wed 14 Sep 2016
896,579
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LightItUp4HD
keywords:
Fri 16 Oct 2020
167,157
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List of HD resources in Word Format
List of HD resources in Word Format for printing. keywords: HD, resources
Wed 14 Sep 2016
26,204
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May 2021 Newsletter
Associated with news item 3272 keywords:
Mon 07 Jun 2021
6,321,994
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Nutrition and HD
keywords: diet, HD, nutrition, food, eating
Wed 21 Oct 2020
343,368
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Service user quote
keywords:
Fri 16 Oct 2020
103,695
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Talking with Kids about HD
HDSA 2013 keywords: children, parents, Huntingtons
Wed 14 Sep 2016
8,461,277
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Talking with Kids about Huntingtons Disease
HDSA 2012 keywords: HD, children, parents, Huntingtons
Wed 14 Sep 2016
450,826
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Top 10 Tips for Adapting Your Home for HD
keywords: home adaptations, lighting, falls, hazards
Wed 14 Sep 2016
90,299
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Understanding Behaviour In Huntington’s Disease: A Guide For Professionals
HDSA 2014 keywords: moods, behaviour, aggression, apathy, anger, depression, medication
Wed 14 Sep 2016
5,530,634
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What every carer needs to know about mental capacity
Produced by Carers Trust to help carers understand mental capacity law. keywords: mental capacity, legislation, caring
Wed 14 Sep 2016
1,460,735
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